A Death Plan
taken from The Natural Death Centre

About a third of us in the UK get around to making a Will, which specifies our wishes for what should happen after our death, as regards our funeral and our children and our possessions. A tiny percentage make an Advance Directive or Living Will (available with a Death Plan, and an Advance Funeral Wishes form from The Natural Death Centre for £7 per set; order securely online by credit card) stating how much medical intervention we want when dying. But hardly anyone makes a death plan, similar to a birth plan, saying what they would ideally like in terms of atmosphere and environment as they lie dying. Of course no one can be sure how they will die or whether such a plan in the event will be of any relevance, and they may change their minds when the time comes; but nevertheless, a death plan may help friends and relatives to know one’s orientation and wishes.

In the hope of encouraging readers to improve on the following list, or to send in their sample filled-in versions of this list, or to write a list of their own, here is a first attempt at a death plan. [Separate sheets can be used for longer responses, using the numbers below to refer your reponses back to. Underline or tick or cross out or amplify as relevant. This form can be photocopied.]

(1) If my condition is terminal I would like to be told the full details / plus implications of treatment and non-treatment / a summary / not to be told at all / other [specify].

(2) If possible, I would / would not like the doctor to tell me a guess as to how much time I might have left, between best and worst cases, and on average.

(3) I imagine I would / would not like every effort to be made to find alternative medicine and approaches / latest medical breakthroughs that might give me a miraculous last-minute remission.

(4) I have / have not made an Advance Directive, specifying how much high tech medical intervention I wish for when dying and whether or not I wish to be force fed [if yes, the location of this AD].

(5) I imagine that I will / will not choose to fast as death approaches.

(6) If possible, when I am dying I would like to be cared for at ……………………………… [location, whether hospital, hospice, at home, indoors, outdoors, etc].

(7) I would like to be surrounded by ……………………………… [flowers, nature, photos, mementoes, etc].

(8) My next of kin is [name, address, phone number].

(9) If I go into hospital / when I die, what I would like to happen to my pets is …………………………….. .

(10) I would / would not like for close relatives / friends / everyone to be told that I am terminally ill.

(11) Those friends or relatives who I would most like to be involved in my nursing care are ……………………………… .

(12) I would like ……………………………… to be able to sleep in the same room / bed as me.

(13) I may change my mind, but I imagine I would / would not like visitors when near the end. The ones I would particularly like to visit me include ……………………………… [give addresses and phone numbers if necessary].

(14) I would / would not like to be left as alone as possible when dying.

(15) I imagine that I would / would not like to discuss the fact that I am dying with these visitors, and would / would not like to make explicit the possibility that these are final goodbyes.

(16) My religion / spiritual practice / philosophy is mainly ……………………………… and therefore for my dying I would like ……………………………… .

(17) Depending on my medical condition and feelings at the time, the kind of ministrations I might appreciate when dying include:

(18) Music. My favourite pieces would be ………………………………. [state specific music or broad range].

(19) Live singing, chanting, hymns, psalms, particular prayers or texts, etc [as specific as desired].

(20) Physical contact [eg hand held].

(21) Massage.

(22) Aromatherapy [or other such approaches].

(23) The person(s) I would most like to be there at the moment of my death is / are ……………………………… .

(24) I would like to be as conscious / unconscious as possible as I die, and would like pain control treated accordingly. The drugs I imagine I might appreciate include ……………………………… [specific or class of drugs].

(25) For the moment of my death I would / would not like all life support machinery and monitors disconnected from my body.

Signed by:

Name

Signature

Date

This signing is witnessed by the two undersigned, neither of whom stand to benefit from the signatory’s Will:

Name of first witness

Signature

Witness’s occupation and address

Name of second witness

Signature

Witness’s occupation and address

Facing Death and Finding Hope – A Guide to the Emotional and Spiritual Care of the Dying
Review of Presentation by Christine Longaker at the NHO National Conference, Dallas, November, 1998 by Paul Barry

Christine Longaker, author of Facing Death and Finding Hope – A Guide to the Emotional and Spiritual Care of the Dying, was among the presenters at the NHO Symposium in Dallas, Texas in November 1998. Ms Longaker, a long time associate of Sogyal Rinpoche, author of The Tibetan Book of Living and Dying, addressed the personal qualities that caregivers can nurture to bring to bedside of the dying, and the pertinence of the approach to living and dying emerging from Tibetan Buddhist thought.

Ms. Longaker opened the session with an exercise. She asked the audience to just sit quietly and use the image of a shaken glass of muddy water to represent the usual state of our mind, and to imagine that by sitting quietly we could allow another aspect of mind, the natural clarity, to emerge. She asked that the audience members allow their minds to slowly settle as they sat. She ended this opening exercise with the suggestion that such an exercise allows a person to be a little more present. She emphasized the importance of the quality of presence that caregivers bring to their care for the dying.

Ms. Longaker then spoke of her entry into a spiritual path. She spoke of the death of her husband 20 years ago of leukemia, and how her experience with his death moved her toward an involvement with issues related to end of life care. She spoke of her involvement in a hospice program and her introduction to Sogyal Rinpoche. She spoke of her continuing involvement with Sogyal Rinpoche, Rigpa (Sogyal Rinpoche’s network of training centers), and the Spiritual Care Education and Training Program, with which her role is Senior Educator. She spoke of putting into daily practice, from whatever spiritual tradition a person follows, an experience that supports the ability to more present in moments of caring for the dying.

Ms Longaker noted that such daily practices also provide care for the caregiver, creating an atmosphere of greater peace, and the ability to be more present. Ms. Longaker spoke of personal qualities that contribute to care for the dying. She noted genuineness, confidence, and presence.

In speaking about the quality of presence Ms. Longaker addressed the dual aspect of presence. She spoke of our habitual way of being outwardly active but internally absent. The counter to this was seek internally, and act from, a deep clear awareness. She said that recognizing the dying person as a whole person could enhance this quality of deep presence. She spoke of seeing the dying person as more than their suffering. She used the image of mist on a mirror to describe a patient’s suffering. The suffering was not always there. The patient has an essence: intact, whole, infinite, unborn and undying. She described a point of view of death as a transition, that essence continues past this transition. She addressed the possibility that care can support the infinite part of person.

Ms Longaker spoke of genuineness from the point of view of recognizing that there was not a huge difference between the caregiver and dying person. She suggested that caregivers be open to letting the dying give their final lessons about life. She used the image of little boats on a river moving toward a waterfall – the moment of death. She pointed out that no one could be certain when that moment would come for him or her.

In referring to some ideas described in her book she spoke of four tasks of living and dying. She described death as a very active time of life. The four tasks she described as follows: 1. understanding and transforming suffering; 2. making a connection, healing relationships, and letting go; 3. preparing spiritually for death; and, 4. finding meaning in life. She indicated that her main focus in her talk was to address the third task of spiritually preparing for death and assisting patients in this task. She noted that in attending to this task with clients causes us to look at our own death, our fears and how we are applying ourselves to the task of living and dying.

Points that Ms. Longaker made were often accompanied by a story. She said that she used stories rather than overheads. Several points that she made included quotations and references to Sogyal Rinpohe’s work. One quotation, she indicated, summed up a great deal related to the spiritual practices around dying. She repeated several times: “At the moment of death, there are two things that count: Whatever we have done in our lives, and what state of mind we are in at that moment.”

Ms Longaker made a significant point using details from descriptions of Near Death Experiences (NDE’s). She described the sense of expansion, peace and joy that characterize many NDE’s. She described death as a great opportunity to recognize a connection to the infinite. She also offered the view that a risk is present that a person in death may “smuggle across” all theirs fears, attachments, troubles, etc., which would make any after death experience a continuation of the suffering present in the current life. She spoke of a choice that individuals make in how they live and the many moments of transition in everyday life in which a person may choose to continue the habits and suffering that they experience in life. She noted the many “little deaths” that we experience on the way to the “big death” at the end of life. She spoke of the moment of first waking in the morning, a time of presence and awareness, before all the thoughts and concerns about life flood back in to awareness. She spoke of the possibility that we habitually regenerate our suffering every day, and that there is a choice to do other than that through a daily spiritual practice.

Ms. Longaker shared a number of stories to elaborate her points. She told a story about what she described as the practice of the continuous prayer of the heart. A woman took on the practice in her dying of saying, “Lord Jesus Christ have mercy on me.” Ms. Longaker described how this practice transformed the woman’s process of dying. She spoke of the importance of facilitating a dying client’s effort to find meaning in their life and death. She spoke of the importance of compassion. She told a story of concentration camp victims in W.W.II dedicating their suffering to the wish for the well being of others whom they loved.

Ms. Longaker referred to Elizabeth Kubler-Ross’s work. She spoke of a Reverend Mwalimu Imara and the notion of three commitments for a meaningful life. She described the three commitments as follows: To become aware of and accept ourselves; to invest ourselves in authentic dialogue with others; and, to decide on a positive direction of growth.

Ms. Longaker offered a description of a spiritual practice from the Tibetan Buddhist tradition. She spoke of Phowa: Traditional Phowa and Essential Phowa. She described the process of Essential Phowa. The reader may be interested to know that this practice as described is on pages 124-5 of Ms. Longaker’s book. Ms. Longaker’s book is available through Main Street Books, Doubleday, New York (on the web at http://www.bdd.com). The Spiritual Care Education and Training Program is at 499 Powell Street, Suite 200, San Francisco, CA, 94102-95103 (also on the web at http://www.atlantech.net/rigpa/spcarenw.htm). There is a link to an interview with Ms. Longaker on the Rigpa site at http://www.microtec.net/~inerson/ondeath/longaker.html.

Death and Eastern Thought, Frederick H. Holck editor
Abingdon Press, NY 1974

I came upon this book at the local library and half heartedly picked it up for a quick look as it seem rather dated. I was pleasantly surprised. It is a thorough and well written introduction to the topic especially in regard to Hinduism. It also covers Buddhism (giving a history of Buddha’s life and how his teachings developed), Jainism, and the Chinese and Japanese traditions. Each chapter is written by a different expert and the forward is an excellent discussion which compares eastern and western ontological concepts. The next three chapters deal with the Vedic period, later Hindu traditions and the orthodox (Hindu) teachings. Next the heterodox teachings are covered, ie Buddhism and Jainism.
Three modern Hindu thinkers are then presented; Tagore, Gandhi and Radhakrishnan. The book ends with short presentations of Chinese Taoism and Japanese pre-Buddhist traditions.
As you can see, well over half of the book is dedicated to some form of Hinduism and it really is a good introduction to this complex ancient religion. The forward and the chapter on modern Hindu thought are especially noteworthy, they bring one much closer to an understanding of the great Vedic philosophical concepts which have taken centuries to develop and which are still unfolding.